The Care-related Quality of Life instrument (CarerQol) was designed to measure and value the impact of providing informal care on carers. It combines a subjective burden measure that provides a comprehensive description of the caregiving situation (CarerQol-7D) with a valuation of informal care in terms of well-being (CarerQol-VAS). Utility tariffs to calculate a weighted sum score of the CarerQol-7D are also available (see under ‘Valuation sets’).
The instrument can be applied to measure and value the subjective burden of providing informal care, or be included in the ‘effect-side’ of multi-criteria or costs-consequence analyses of interventions aimed at patients or elderly. The CarerQol can also be used in cost-utility analyses of interventions aimed at informal carers.
The CarerQol is currently available in English (Word | PDF) and Dutch (Word | PDF), German (Word | PDF), Norwegian (Word | PDF), Swedish (Word | PDF), Italian (Word | PDF), Spanish (Word | PDF) and Portuguese (Word | PDF). German, Norwegian, Swedish, Italian, Spanish and Portuguese translations of the CarerQol are made available by ACTIFcare, a European dementia research project. When using the German, Norwegian, Swedish, Italian, Spanish and Portuguese translations of the CarerQol, please acknowledge ACTIFcare.
The CarerQol is part of the iMTA Valuation of Informal Care (iVICQ) questionnaire.
iMTA Valuation of Informal Care Questionnaire iVICQ
Many people provide support to a family member or friend in need of care. Lending this informal care may have a considerable impact on their life, in negative and positive ways. The overall effect on informal carers depends on the balance between these effects. Because the effects may be substantial and influence the ability of carers to persevere in their caregiving, it is pertinent that evaluations in health care take account of the impact of illness on the significant others of patients, in particular informal carers.
Researchers interested in measuring the impact of informal care and including informal care in economic evaluations of health care interventions can use the iMTA Valuation of Informal Care Questionnaire (iVICQ).
The iVICQ is based on work in this field by Erasmus School of Health Policy & Management (ESHPM) and the institute for Medical Technology Assessment (iMTA), Erasmus University Rotterdam, and discusses how to measure and value:
- Objective burden of caregiving (e.g., duration and intensity)
- Subjective burden of caregiving (e.g., perceptions of strain)
- Health and well-being effects of caregiving
The iVICQ manual and questionnaire may be used without prior permission from the authors. A reference to the iVICQ manual in published work is highly appreciated.
Utility tariffs enable calculation of a weighted sum score of the CarerQol-7D. Available tariffs are based on preferences of the public for different caregiving situations and therefore concern national tariffs. Using the weighted sum score, the worst caregiving situation receives a score of 0, while the best now has a score of 100.
Utility tariffs are available for the Netherlands (Hoefman et al. 2013), UK, US, Australia, Germany and Sweden (Hoefman et al. 2016).